Exploring the Power of Rare - Welcome to the World of Rare Diseases! Although we humans may share 99.9% similarity,…
To help raise awareness of rare disease dyskeratosis congenita, and other telomere biology disorders caused by short telomeres, Jeni has…
To help raise awareness of rare disease dyskeratosis congenita, Julian’s mom Mayra has kindly shared his journey through 4 stem…
To mark Rare Disease Day, we have a guest blog from Mike who is kindly willing to share his experience…
Durhane Wong-Rieger, President & CEO of CORD (Canadian Organization for Rare Disorders), has kindly shared this guest blog explaining why…
Now in its 12th year, Rare Disease Day will be celebrated globally on February 29 2020. Here we explain why…