Rare Disease

Rare Diseases Day – 28/02

Exploring the Power of Rare - Welcome to the World of Rare Diseases! Although we humans may share 99.9% similarity,…

2 years ago

Guest Blog: Julian’s 4 stem cell transplants – his mom shares their story for Rare Disease Day

To help raise awareness of rare disease dyskeratosis congenita, Julian’s mom Mayra has kindly shared his journey through 4 stem…

4 years ago

Guest blog: CORD and Rare Disease Day

Durhane Wong-Rieger, President & CEO of CORD (Canadian Organization for Rare Disorders), has kindly shared this guest blog explaining why…

5 years ago