Guest blog

Guest blog: Team Telomere launches new TBD Diagnosis and Management Guidelines

The second edition Telomere Biology Disorders: Diagnosis and Management Guidelines have been officially published. This is a comprehensive reference manual…

3 years ago

Guest blog: Jeni shares her experience with short telomeres for Rare Disease Day

To help raise awareness of rare disease dyskeratosis congenita, and other telomere biology disorders caused by short telomeres, Jeni has…

3 years ago

Guest blog: The CPFF are honouring those touched by pulmonary fibrosis during Awareness Month

This guest blog, from Sharon Lee, Executive Director at CPFF, is to mark Pulmonary Fibrosis Awareness Month this September. Find…

3 years ago

Guest blog: A Patient’s Guide to Participating in Pulmonary Fibrosis Awareness Month

Ahead of Pulmonary Fibrosis Awareness Month, which is marked every September, Laura Devitt, Director, Programs at Pulmonary Fibrosis Foundation kindly…

3 years ago

Guest Blog: Julian’s 4 stem cell transplants – his mom shares their story for Rare Disease Day

To help raise awareness of rare disease dyskeratosis congenita, Julian’s mom Mayra has kindly shared his journey through 4 stem…

4 years ago

Guest blog: Brian shares his journey with dyskeratosis congenita for Telomere Biology Disorder Month

To mark Telomere Biology Disorder Month (TBD Month) this November, Brian is kindly sharing his journey of being diagnosed with…

4 years ago

Guest blog: Colleen, Team Telomere President, shares her story

This Telomere Biology Disorder Awareness Month (TBD Month) we have a guest blog from Colleen, Team Telomere President & Chair…

4 years ago

Guest blog: Heather shares her experience with IPF for PF Awareness Month

This Pulmonary Fibrosis Awareness Month we have a guest blog from Heather, who is kindly sharing her experience with IPF…

4 years ago

Guest blog: Canadian Pulmonary Fibrosis Foundation launches Hope Breathes Here

This guest blog from the Canadian Pulmonary Fibrosis Foundation marks Pulmonary Fibrosis Awareness Month and explains the events and activities…

4 years ago

Guest blog: PFF presents Pulmonary Fibrosis Awareness Month 2020

In support of the Pulmonary Fibrosis Awareness Month we are pleased to share a guest blog from the Pulmonary Fibrosis Foundation explaining…

4 years ago