Guest blog: Heather shares her experience with IPF for PF Awareness Month

Heather shares her experience with IPF for PF Awareness Month

This Pulmonary Fibrosis Awareness Month we have a guest blog from Heather, who is kindly sharing her experience with IPF to help raise awareness. IPF diagnosis I was diagnosed with Idiopathic Pulmonary Fibrosis (IPF) in February, 2013. I was 43 years old. My father and grandfather both passed from IPF so I knew there was […]

Guest blog: Canadian Pulmonary Fibrosis Foundation launches Hope Breathes Here

Canadian Pulmonary Fibrosis Foundation Hope Breathes Here Awareness Month

This guest blog from the Canadian Pulmonary Fibrosis Foundation marks Pulmonary Fibrosis Awareness Month and explains the events and activities they have coordinated for September. Register now for fun and informative activities during Pulmonary Fibrosis Awareness Month Despite the pandemic, Pulmonary Fibrosis Awareness Month this September may be the best ever from the Canadian Pulmonary […]

Guest blog: PFF presents Pulmonary Fibrosis Awareness Month 2020

Pulmonary Fibrosis Awareness Month

In support of the Pulmonary Fibrosis Awareness Month we are pleased to share a guest blog from the Pulmonary Fibrosis Foundation explaining the theme for this year’s campaign, and how to get involved.  September marks Pulmonary Fibrosis Awareness Month (PFAM), presented by the Pulmonary Fibrosis Foundation (PFF). This annual awareness campaign spreads the word about pulmonary fibrosis […]

Guest blog: Genetic Counselor Katie discusses important considerations when testing for a Telomere Biology Disorder

Katie Bergstrom, Genetic Counselor talks testing for telomere biology disorders

Katie Bergstrom, a Genetic Counselor based in Seattle, kindly shares a guest blog discussing some important considerations for both individuals and families when testing for Telomere Biology Disorders. Telomere biology disorders (TBDs) are hereditary conditions characterized by disorders related to telomere maintenance. You can learn more about TBDs in this dedicated blog. TBDs can be […]

Guest blog: Mike shares his experience with dyskeratosis congenita for Rare Disease Day

Mike shares his story with dyskeratosis congenita to mark Rare Disease Day

To mark Rare Disease Day, we have a guest blog from Mike who is kindly willing to share his experience with familial dyskeratosis congenita.  Hello, my name is Mike and I have a rare disease. It is called Dyskeratosis Congenita (DC) and it runs in my family. My father and my uncle (his twin) had […]

Guest blog: CORD and Rare Disease Day

CORD - Rare Disease Day - RepeatDx

Durhane Wong-Rieger, President & CEO of CORD (Canadian Organization for Rare Disorders), has kindly shared this guest blog explaining why this year is so important for CORD and how they will be getting involved with Rare Disease Day 2020.  Rare Disease Day 2020 – A Significant Watershed Every four years, International Rare Disease Day falls […]

Guest blog: Canadian Pulmonary Fibrosis Foundation

To mark Pulmonary Fibrosis Awareness Month this September, we have a special guest blog from the Canadian Pulmonary Fibrosis Foundation (CPFF), to update on some awareness-raising activities and campaigns! CLARKE WALK OFFERS HOPE FOR THE FUTURE The month of September has been proclaimed as Pulmonary Fibrosis Awareness Month. All across Canada, people will band together […]

Guest blog: It’s Pulmonary Fibrosis Awareness Month – Know the Symptoms of this Serious Lung Disease

To show our support for Pulmonary Fibrosis Awareness Month we are pleased to share a special guest blog from the Pulmonary Fibrosis Foundation explaining what the symptoms of the condition are and how to get diagnosed.  Persistent dry cough. Fatigue. Shortness of breath. These symptoms are sometimes associated with a passing virus, especially during the […]

Guest blog: Let The World Know – September Is Pulmonary Fibrosis Awareness Month

Samantha Simmons, Coordinator of Marketing & Communications for the Pulmonary Fibrosis Foundation, shares a special guest blog explaining how you can support Pulmonary Fibrosis Awareness Month. Each September, the Pulmonary Fibrosis Foundation celebrates Pulmonary Fibrosis Awareness Month. We invite you to join us to raise awareness for those who have been impacted by pulmonary fibrosis […]