Guest blog: Jeni shares her experience with short telomeres for Rare Disease Day

Jeni shares her experience with short telomeres on Rare Disease Day

To help raise awareness of rare disease dyskeratosis congenita, and other telomere biology disorders caused by short telomeres, Jeni has shared her experience this Rare Disease Day. My name is Jeni Colter. At fifty years old, I have many things; A wonderful husband, two great kids, a house, two dogs and very short telomeres. Very, […]

Guest blog: The CPFF are honouring those touched by pulmonary fibrosis during Awareness Month

Guest blog from CPFF for PF Awareness Month

This guest blog, from Sharon Lee, Executive Director at CPFF, is to mark Pulmonary Fibrosis Awareness Month this September. Find out what the organization is doing to raise awareness and how you can show your support. Throughout the month of September, the Canadian Pulmonary Fibrosis Foundation (CPFF) is sharing the stories of those living with […]

Guest blog: A Patient’s Guide to Participating in Pulmonary Fibrosis Awareness Month

Pulmonary Fibrosis Awareness Month presented by RepeatDx

Ahead of Pulmonary Fibrosis Awareness Month, which is marked every September, Laura Devitt, Director, Programs at Pulmonary Fibrosis Foundation kindly shared the below information about getting involved. Every September, those who have been impacted by pulmonary fibrosis (PF) unite for Pulmonary Fibrosis Awareness Month (PFAM). Melissa King, a PFF Ambassador from New York, has participated in […]

Guest Blog: Julian’s 4 stem cell transplants – his mom shares their story for Rare Disease Day

Julian's story of 4 stem cell transplants

To help raise awareness of rare disease dyskeratosis congenita, Julian’s mom Mayra has kindly shared his journey through 4 stem cell transplants this Rare Disease Day. At the age of 3, our son was diagnosed with a rare genetic disorder called, dyskeratosis congenita. We were really fortunate our search led us to the Jimmy Fund […]

Guest blog: Brian shares his journey with dyskeratosis congenita for Telomere Biology Disorder Month

Telomere Biology Disorder Month guest blog from Brian

To mark Telomere Biology Disorder Month (TBD Month) this November, Brian is kindly sharing his journey of being diagnosed with dyskeratosis congenita, liver failure and undergoing a liver transplant. My journey with dyskeratosis congenita (DC) started in September 2016 when I was first diagnosed. I had become pretty sick in a short period of time, […]

Guest blog: Heather shares her experience with IPF for PF Awareness Month

Heather shares her experience with IPF for PF Awareness Month

This Pulmonary Fibrosis Awareness Month we have a guest blog from Heather, who is kindly sharing her experience with IPF to help raise awareness. IPF diagnosis I was diagnosed with Idiopathic Pulmonary Fibrosis (IPF) in February, 2013. I was 43 years old. My father and grandfather both passed from IPF so I knew there was […]

Guest blog: Canadian Pulmonary Fibrosis Foundation launches Hope Breathes Here

Canadian Pulmonary Fibrosis Foundation Hope Breathes Here Awareness Month

This guest blog from the Canadian Pulmonary Fibrosis Foundation marks Pulmonary Fibrosis Awareness Month and explains the events and activities they have coordinated for September. Register now for fun and informative activities during Pulmonary Fibrosis Awareness Month Despite the pandemic, Pulmonary Fibrosis Awareness Month this September may be the best ever from the Canadian Pulmonary […]

Guest blog: PFF presents Pulmonary Fibrosis Awareness Month 2020

Pulmonary Fibrosis Awareness Month

In support of the Pulmonary Fibrosis Awareness Month we are pleased to share a guest blog from the Pulmonary Fibrosis Foundation explaining the theme for this year’s campaign, and how to get involved.  September marks Pulmonary Fibrosis Awareness Month (PFAM), presented by the Pulmonary Fibrosis Foundation (PFF). This annual awareness campaign spreads the word about pulmonary fibrosis […]