Guest blog: Heather shares her experience with IPF for PF Awareness Month

Heather shares her experience with IPF for PF Awareness Month

This Pulmonary Fibrosis Awareness Month we have a guest blog from Heather, who is kindly sharing her experience with IPF to help raise awareness. IPF diagnosis I was diagnosed with Idiopathic Pulmonary Fibrosis (IPF) in February, 2013. I was 43 years old. My father and grandfather both passed from IPF so I knew there was […]

Guest blog: Canadian Pulmonary Fibrosis Foundation launches Hope Breathes Here

Canadian Pulmonary Fibrosis Foundation Hope Breathes Here Awareness Month

This guest blog from the Canadian Pulmonary Fibrosis Foundation marks Pulmonary Fibrosis Awareness Month and explains the events and activities they have coordinated for September. Register now for fun and informative activities during Pulmonary Fibrosis Awareness Month Despite the pandemic, Pulmonary Fibrosis Awareness Month this September may be the best ever from the Canadian Pulmonary […]

Guest blog: PFF presents Pulmonary Fibrosis Awareness Month 2020

Pulmonary Fibrosis Awareness Month

In support of the Pulmonary Fibrosis Awareness Month we are pleased to share a guest blog from the Pulmonary Fibrosis Foundation explaining the theme for this year’s campaign, and how to get involved.  September marks Pulmonary Fibrosis Awareness Month (PFAM), presented by the Pulmonary Fibrosis Foundation (PFF). This annual awareness campaign spreads the word about pulmonary fibrosis […]

3 reasons it may be helpful to order a telomere test for idiopathic pulmonary fibrosis

Reasons telomere testing may be useful for idiopathic pulmonary fibrosis

There is a growing body of clinical research investigating idiopathic pulmonary fibrosis and telomere biology – here we explore some reasons why ordering a telomere length test may provide useful insight when diagnosing or treating someone with idiopathic pulmonary fibrosis.   What is idiopathic pulmonary fibrosis? Idiopathic pulmonary fibrosis (PF) is a complex disorder characterized […]

Why order a telomere test?

Why order a telomere test?

With research and clinical applications for telomere length measurements increasing we discuss some situations when it may be helpful for physicians or researchers to order a telomere test. There are many situations in which telomere length measurements can be helpful, both in clinical care and in research settings. For the former, telomere test results can […]

Guest blog: Mike shares his experience with dyskeratosis congenita for Rare Disease Day

Mike shares his story with dyskeratosis congenita to mark Rare Disease Day

To mark Rare Disease Day, we have a guest blog from Mike who is kindly willing to share his experience with familial dyskeratosis congenita.  Hello, my name is Mike and I have a rare disease. It is called Dyskeratosis Congenita (DC) and it runs in my family. My father and my uncle (his twin) had […]

What you need to know: insurance and telomere length testing

RepeatDx telomere testing insurance forms

Navigating insurance coverage for healthcare costs can be difficult, especially when dealing with less common conditions and tests. We’ve compiled some tips and resources to help when it comes to ordering telomere length testing.   For physicians supporting patients through diagnosis, it can be a complicated and lengthy process, especially in the case of rare […]

Guest blog: Canadian Pulmonary Fibrosis Foundation

To mark Pulmonary Fibrosis Awareness Month this September, we have a special guest blog from the Canadian Pulmonary Fibrosis Foundation (CPFF), to update on some awareness-raising activities and campaigns! CLARKE WALK OFFERS HOPE FOR THE FUTURE The month of September has been proclaimed as Pulmonary Fibrosis Awareness Month. All across Canada, people will band together […]