This Pulmonary Fibrosis Awareness Month we have a guest blog from Heather, who is kindly sharing her experience with IPF to help raise awareness. IPF diagnosis I was diagnosed with Idiopathic Pulmonary Fibrosis (IPF) in February, 2013. I was 43 years old. My father and grandfather both passed from IPF so I knew there was […]
To mark Rare Disease Day, we have a guest blog from Mike who is kindly willing to share his experience with familial dyskeratosis congenita. Hello, my name is Mike and I have a rare disease. It is called Dyskeratosis Congenita (DC) and it runs in my family. My father and my uncle (his twin) had […]
Stem cell transplants save lives; but should doctors be considering donor telomere length ahead of a transplant, and if so, why? What is a stem cell transplant and why are they needed? Stem cell transplants (SCTs) involve collecting cells from the blood stream or bone marrow and delivering them to the recipient’s blood by transfusion. […]