This Pulmonary Fibrosis Awareness Month we have a guest blog from Heather, who is kindly sharing her experience with IPF to help raise awareness. IPF diagnosis I was diagnosed with Idiopathic Pulmonary Fibrosis (IPF) in February, 2013. I was 43 years old. My father and grandfather both passed from IPF so I knew there was […]
Guest blog: Mike shares his experience with dyskeratosis congenita for Rare Disease Day
Should telomere length be tested before a stem cell transplant?
Stem cell transplants save lives; but should doctors be considering donor telomere length ahead of a transplant, and if so, why? What is a stem cell transplant and why are they needed? Stem cell transplants (SCTs) involve collecting cells from the blood stream or bone marrow and delivering them to the recipient’s blood by transfusion. […]